October 18, 2023
P. F. Anderson Coauthors Harvard Law’s Bill of Health Blog Post about Difficulties with Finding Disability-Related Research within PubMed
U-M CDHW member P. F. Anderson has coauthored a blog post entitled “On Searching for the Unknown with Unspeakable Names: Searching PubMed for Disability Research,” published September 27, 2023
P. F. Anderson, an emerging technologies informationist, and LaTeesa James, a health sciences informationist at the University of Michigan Library[JJ1] , have identified three major reasons it can be so difficult to find disability-related research within PubMed, the free search engine maintained by the U.S. National Library of Medicine and the National Institutes of Health:
- Disability is too big – “The idea of disability can include every part of the body or mind, and the impacts of disability can touch on every part of lived experience.”
- Disability language is too much – The authors “identified many definitions of disability, but no consensus… [therefore] creating a lack of common language for the same concepts between resources and databases.”
- Disability language has stigma – “Language surrounding disability is ever changing….” This is especially important because while adopting currently accepted terms related to disability is a good step for researchers to take, it can make finding older yet relevant publications difficult.
Read the full article by going to https://blog.petrieflom.law.harvard.edu/2023/09/27/pubmed-disability-research/.