October 18, 2023

P. F. Anderson Coauthors Harvard Law’s Bill of Health Blog Post about Difficulties with Finding Disability-Related Research within PubMed

U-M CDHW member P. F. Anderson has coauthored a blog post entitled “On Searching for the Unknown with Unspeakable Names: Searching PubMed for Disability Research,” published September 27, 2023

P. F. Anderson, an emerging technologies informationist, and LaTeesa James, a health sciences informationist at the University of Michigan Library[JJ1] , have identified three major reasons it can be so difficult to find disability-related research within PubMed, the free search engine maintained by the U.S. National Library of Medicine and the National Institutes of Health:

  1. Disability is too big – “The idea of disability can include every part of the body or mind, and the impacts of disability can touch on every part of lived experience.”  
  2. Disability language is too much – The authors “identified many definitions of disability, but no consensus… [therefore] creating a lack of common language for the same concepts between resources and databases.”
  3. Disability language has stigma – “Language surrounding disability is ever changing….” This is especially important because while adopting currently accepted terms related to disability is a good step for researchers to take, it can make finding older yet relevant publications difficult.

Read the full article by going to https://blog.petrieflom.law.harvard.edu/2023/09/27/pubmed-disability-research/.