Participate in a Disability Health Study

Michigan Spinal Cord Injury Model System (MI-SCIMS)

The overarching focus of MI-SCIMS is to enhance the chronic care management of individuals living with spinal cord injury (SCI). MI-SCIMS is part a national network of model systems that have been working collaboratively to improve care and outcomes for individuals with SCI for over 50 years. Research conducted at each of these SCIMS centers has influenced standards for the assessment, treatment, and management of persons with SCI.

Michigan Medicine is recruiting individuals receiving inpatient care for new traumatic SCI. To be eligible, you must be admitted into Michigan Medicine inpatient rehabilitation as your first rehabilitation within one year of injury.

How can I participate?

If you choose to participate, please get in touch with MI-SCIMS by phone or email (see below). A member of our research team will verify your eligibility and collect information such as:

  • Demographic information (such as age, race, education, etc.)
  • Injury characteristics
  • Quality of life (instead of “functional outcomes”)
  • Physical health
  • Social and emotional health
  • Employment
  • Long-term health and well-being

How long will this take?

The inpatient interview will take approximately 20-30 minutes. 
The second and following interviews will take approximately 40-50 minutes, with additional time if interested in participating in additional studies. 

What is the process of participating? 

If you participate in this study, we will conduct an interview with you while you are still an inpatient, approximately a year after your injury, approximately five years after your injury, and every five years thereafter unless you decide to no longer participate.

What will my data be used for? 

  1. Data from the National SCIMS Database is intended to:
  2. Identify demographics and the use of services by individuals with SCI.
  3. Examine specific rehabilitation, health, and life course outcomes of SCI.
  4. Establish expected rehabilitation treatment outcomes for SCI.
  5. Identify and evaluate trends over time associated with SCI.
  6. Serve as a resource for conducting historical, prospective, and longitudinal SCI-related research.

Will I be compensated for my time?

Yes. The exact amount will depend on the length of the interviews you participate in.

How to contact MI-SCIMS

Call (734) 764-5217
Or email felskem@med.umich.edu

This study is approved by the University of Michigan Institutional Review Board. Study ID: HUM00027603.

This study is supported by a grant from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR #90SIMS0018).